American Brain Tumor Association
800 886-2282 toll-free
ABTA funds brain tumor research and provides information to help patients make educated decisions about their health cares. ABTA offers printed materials about the treatment of brain tumors, and provides listings of physicians, treatment facilities, and support groups throughout the country. Offers a free publication A Handbook for Family Caregivers of Patients with Brain Tumors. A limited selection of Spanish-language publications is available.
Brain Tumor Clinical Trials
A database of treatments for brain tumors.
Children’s Brain Tumor Foundation
866 228-4673 toll-free
Mission is to improve the treatment, quality of life, and the long-term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy. Provides free publication A Resource Gide for Parents of Children with Brain and Spinal Cord Tumors. Sponsors conferences about research, treatments, and strategies for living. Full-time pediatric oncology social worker available to assist families. Other offerings include newsletters, annual teleconferences, a parent-to-parent network, and children’s programs. Publications are available in Spanish.
Keck Foundation Center for Integrative Neuroscience
University of California, San Francisco
Massachusetts General Hospital Neurological Service
National Brain Tumor Society
West Coast Office
22 Battery Street, Suite 612
San Francisco, California 94111
East Coast Office
124 Watertown Street, Suite 2D
Watertown, MA 02472
NBTS brings together the best in brain tumor research and supportive patient services We offer hope to patients, families, and caregivers during every stage of the treatment journey. We invest wisely and strategically in innovative research that will lead to advances and, ultimately, to a cure. Provides financial assistance to eligible patients with primary and metastatic brain tumors for prescription co-pays and some medically related expenses.
North American Brain Tumor Coalition
A network of charitable organizations dedicated to eradicating brain tumors through research grans, raising awareness, and advocating for increased research, access to specialized care, and other issues affecting brain tumor patients.
Patient Advocate Foundation Co-pay Relief Program
700 Thimble Shoals Blvd. @200
Newport News, Virginia 23606
Provides direct co-payment assistance for pharmaceutical products to insured patients (including Medicare Part D beneficiaries) who qualify financially and medically.
Pediatric Brain Tumor Foundation
800 253-6530 toll-free
Seeks to find the cause of and cure for brain tumors in children by supporting medical research, increasing public awareness of the disease, and aiding in early detection and treatment of childhood brain tumors. Supplies educational resources to families, medical professionals, and the public. Also has an educational scholarship program for pediatric brain tumor survivors.
The information in this web database has been offered by the organizations themselves.
If you find any information that is not current or correct, please contact Nancy.
If there are organizations that are not listed here that you feel would be helpful to others, we welcome your suggestions.
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